The Children's Trust is the UK's leading charity for
children with brain injury.
They support thousands of children and families across the country every year.
The Children’s Trust provides rehabilitation to children and young people with acquired brain injury at their national specialist centre in Surrey, helping them make the best recovery possible after a serious incident or illness.
The charity is also home to an expert multidisciplinary team who offer a nationwide community service that supports children and young people with acquired brain injury following an accident of illness.
The centre is also home to one of the only specialist schools in the UK dedicated to providing education, therapy and care exclusively for children and young people aged 3-19 with profound and multiple learning difficulties (PMLD). They also support a range of neurological conditions and complex medical needs through our residential and day placements.
You can find out more about The Children’s Trust by visiting their website.
Three-year-old Phoebe came down with flu-like symptoms at the end of September 2018. Over the following days she became increasingly weak and eventually was unable to move her limbs and could not breathe for herself. She was diagnosed with acute flaccid myelitis (AFM), a rare disease that affects the spinal cord. She spent the following four months in an intensive care unit, on a ventilator and unable to move anything but her left hand.
The prognosis for AFM is unclear. It commonly affects children but where some make a full recovery, others remain paralysed and the extent of the disability depends on the extent of the nerve damage. After the initial high dose of steroids the only further treatment available is intensive physiotherapy.
In February 2019 Phoebe was transferred to The Children's Trust at Tadworth in Surrey, where she is currently undergoing an intensive rehabilitation programme. In just eight weeks, Phoebe has progressed from sitting independently for short periods to walking (and even scooting) with support.
Phoebe’s right arm remains the most severely affected with very limited movement. She is having to relearn how to use her “helping hand” to perform 2 handed activities. As a result of her rehabilitation, she can now use her right hand during play and meal times. This gives her a great dealmore independence along with her ability to walk short distances. Phoebe loves all her therapy sessions especially music and movement.
It's Phoebe's ambition to be able to go back to ballet class again, and whatseemed impossible a few months ago is starting to become a reality.
Phoebe’s parents hope with daily exercise and focused effort Phoebe will walk unaided and build up the strength to breathe again for herself.
The Children’s Trust is the UK’s leading charity for children with brain injury.
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